Why is this project sharing participant information online?

Since new ideas often arise through conversation, this project builds on contemporary social media practices to learn more about the architectural preferences and experiences of people who have current or previous experience with palliative care settings.

Your information will only be made public if you tick the box agreeing to share this information on the website. The website is designed so that you cannot finish your post before you have confirmed whether you want to share this information or send it confidentially to the researcher.

View the Participant Information Sheet

Contribution Guidelines

To protect the confidentiality of our participants, their family members and healthcare professionals, the following details cannot be visible within photographs or listed within the posts that are shared publicly:

  • Written posts that list the names of the patient, family or staff member/s, or the names and/ or specific locations of a hospital.
  • Photographs with people, hospital logos or names in them. If you’d really like to share a photograph publicly that has a person in it, you can blur the appearance of the person within the photograph so they cannot be recognised.

Content or language that may be considered disturbing to others, or that may be considered defamatory towards individuals or organisations cannot be uploaded for public viewing.

The researcher is obligated to take a conservative view of this, however, even if your post cannot be made public it will be highly valued by the researcher and used to inform the broader project findings.

Examples of the kinds of photographs that are okay for sharing on this site.

IMAGE CREDIT: Hummingbird House. Architect: ThomsonAdsett. Photograph by Alicia Taylor.
IMAGE CREDIT: Architect: Perkins + Will. Photograph by Jim Roof.
These photos are okay to upload because they do not show any hospital names or logos, and any people within them cannot be identified because they are not facing the camera or because their faces have been blurred.
I selected ‘Yes, this can be shared with others’ but my post isn’t showing; what happened?

The researcher is obligated to check all posts against the project guidelines before they can be released for public view. Your post may not be showing because the researcher has been delayed or because something within your post doesn’t meet the guidelines listed above.

What if I agreed to share my post but have now changed my mind?

Contact the researcher and this will be removed from public view immediately, no questions asked. Contact the researcher using the below link.

Contact the
researcher

Your confidentiality is taken seriously

All information provided to the researcher, whether cleared for sharing on this website or not, will be used to inform the broader research project. The data you provide may be cited within conference presentations and journal articles. Feedback will be made anonymous using a numerical code so that user names cannot be traced back to individuals.

This website will remain active and publicly accessible for the duration of this project (anticipated end date: 20 December 2022). Following closure of the website this data will be kept securely in the School of Architecture and Built Environment for five years from the end date of the project, after which time it will be destroyed.

How can you keep up with the progress of this project?

Throughout this project the team will update the website with news of conference presentations and publications so feel free to check back intermittently under the Publication tab.

Learn More

Who do I contact if I have concerns or complaints about this research project?

This project has been approved by the University’s Human Research Ethics Committee, Approval No. H-2019-0056. Should you have concerns about your rights as a participant in this research, or you have a complaint about the manner in which the research is conducted, it may be given to the researcher, or, if an independent person is preferred, to the

Human Research Ethics Officer
Research Services, NIER Precinct
The University of Newcastle
University Drive, Callaghan
NSW 2308, Australia

(02) 4921 6333
human-ethics@newcastle.edu.au